I've been sick for THREE years. Doctors don't know whats wrong with me. They keep diagnosing me left and right, then un-diagnosing me, then telling me I am crazy and making it up. Then charting that I am having real symptoms, but that it must be anxiety converting itself into physical illness. Like srsly....... I was diagnosed with IST (where my heart beats too fast and sometimes out of rhythm), and NMH (fainting). It's most probally a Autonomic Nerve System problem, because ALL my symptoms point to it, right down to the drops in blood pressure and everything, but they just won't test me for this Dysautonomia illness that runs in my family on my dad's side some. Not even to rule it out. Because it's so "rare" I "can't possibly have it". And let's get one thing straight. I do NOT feel anxious. It did NOT come on in the middle of a time of stress. This illness came on randomly. Now doctors are like wanting to tell me how I feel and not. I had one lady try to brainwash me the last trip to doctors and it's really frustrating >_>........ My fav part of that kooky woman's convo went something kinda like this~ "What are you thinking about right now?" "I want to draw o.o cause I like to draw~" "Oh (obviously thinking I was going to say I was thinking about how sick I am).....okay........ummm so what do you usually do when you want to draw?" "Uh.....I draw?" "Oh......." "?" "Actually you tell yourself that if you draw you'll get sicker so you don't do it." "Uh, no? I actually draw........o.o" "Oh.......well then you don't feel sick when you draw, so it's obviously in your head." "Actually no. I draw even when it hurts me to draw because I'm not just gonna sit there and do nothin-" "yeah you just sit there and focus on your sickness but if you actually drew and forgot about it you wouldnt be sick." "ANYWAY, I draw even though it really hurts me, and I have to take a lot of breaks cause it makes me realllly sick." "oh.......Do you ever have days when you dont feel sick?" "Like maybe twice a year?" "Focus on those days and youll see your not thinking about being sick." "Uh, i never just THINK about being sick, it just happens." "No, on the days you dont feel sick its cause your not thinking about it that much." "Not really o.o. In fact I think about it more, cause I'm like 'wow Im not as sick today, thats werid!' and that thought about sickness sticks in my mind those days~ so actually I think it makes me think about it MORE cause its so not normal for me~" "Oh.......well...............heres my card, and go see a psychiatrist." "okay~" (She really did say "oh" and looked puzzled THAT many times. lol As if she can't believe that I would actually defy her and not accept her little "You will feel like I say you feel" thing.) XDD And this little conversion thing they're explaining to me they've obviously got their facts all wrong. I researched it after they mentioned it and it was basically absolutely NOTHING like they describe. I think the worst part of my sickness is not the fainting,feeling like I'm dying, throwing up constantly, pain everywhere........it's the doctors and unsupportive family that tell me "Aw it's nothing". I am not evil but I wish for a day they'd just have to be as sick as I am on a daily basis~ Just to shut them the heck up. I guess that was more a rant than a "help me with issues". But seriously, how does someone deal with all the craziness. >_<
Wow that's said that they're treating you like this, best thing I can say it try to see someone you haven't seen before, see if that helps (Did with my Grandma, but by then it was too late to do anything) but keep pushing to get help and you'll get it (My mum finally got my looked at and diagnosed with Aspergers) Hope things get better for you
were you ever to a foreign country? contract a disease that is thought wiped out in america? those american docters would not know what to look for. body chemistry imbalance? the brain is not always doing its job ? hippocampus thingy (at the base of the brain,it regulates hormones and other body chemistry)? (not a doctor) allergy? they can test for them now. but it costs like 2000 dollars. they seem to be thinking it is drepression, which has drawbacks (no excercise, bad diet- results in poor health). but no happy pill proscribed? ever take pain killers?how did they work out? anyone know some online sites that you can plug in some symptoms. and the website pops out some possible causes??
When I p;lug in my symptoms on those sites, I usually end up with POTS (Postural orthostatic Tachycardia Syndrome) which does run in my family somewhat (and what i personally think I have unfortunately). I DO have a severe chemical imbalance (with polycystic ovarian syndrome) but they said my symptoms are not typical of that. I've never been out of country before~. The good news is that I have Medicaid now so money will no longer be an issue~ <3 Wooooo. Hopefully I can get into somewhere where the doctors won't automatically stick me under the anxiety/depression category. They actually did give me meds for it, and those medications nearly killed me and made my problems worse, especially my heartrate and my thinking. I once sat for 4 hours straight staring with my eyes extremely dialated on one of the anxietry meds they gave me........they said that anxiety medication was "working wrong with my body chemistry". It was a medication that is normally provided for anxiety that lead to this in the first place. i was prescribed Elavil for headaches, and after a week of taking it, I started having this problem. I think it threw my body out of whack somehow, so much it got stuck that way. lol Still safe to say that its not anxiety if anxiety medications make stuff 5 bajillion times worse. o.o
So I guess this is half and half... Somewhat. For one thing, you can't just self-diagnose yourself, however, the doctors can't just say you don't have it because it's too rare. Anything is possible. So I suggest you go to another doctor... Really. I actually sorta am in the same situation as you, only at a much lesser degree. I'm suspecting myself of a disorder, but none of my family believe me. Honestly speaking, I just gave up, however, I did manage to push my mom to say, "If you really want, fine, we'll have it checked." I'm not sure if you'll be able to do the same because I obviously don't know your family, but if you keep pushing it and show just how much this affects you, then maybe they'll consider it. If the doctors still say you "can't possibly have it", just keep insisting on making them check you for it. I'm not sure if this is the best thing to do, but it's certainly better than leaving it alone. :D Wish you luck.
Thanks. I know I can't formally diagnose myself, but I'm just looking at family history/genetics and symptoms. The doctors will never give me a straight answer and I honestly do feel like giving up. I lay down and seizure at night, literally, sometimes waking me up jerking my legs with my head spinning and I can't move my body..........I just "deal with it" but there are some times that it just gets so, I don't know......worse. Where I can't move out of bed. And I'm tired of being told it is anxiety when they have NEVER seen it in complete action. I've never ever EVER heard of anxiety doing this to someone, and I have friends who have deep depression and anxiety who are telling me that the doctors are bullsh*t for even suggesting it as they are bad off with it and have never had symptoms like it. My skin is so covered with blisters and boils that I want to rip my skin completely off. Getting a shower hurts. Wearing clothes HURTS. The dermatologist will first say it is one thing, then say "No, thats not it......" then I go to another and they go "He is crazy it is obviously ____" and I take quadrupal the amount of medicine normal people take for the problem, and it does NOTHING. So they go "Oops, must not be that then." =___=;;; Finally a doctor told me that whatever is going on inside of me is whats causing the skin problems too, and that until they figure out what it is and get rid of it, I'll just have ugly, nasty, boil infested skin. Talk about a way to make me feel good >_>;;; pretty much have resigned myself to live with this for the rest of my life. The whole shebang.
I think you're thinking of 'Hypothalamus' heheh :) Anyway I can relate to this problem. My cousin has Chronic fatigue syndrome. She feels so exhausted sometimes she can barely eat or move. She has to miss a lot of time off school. Unfortunately she has this one teacher who downright refuses to believe her, and just thinks she's lazy or an attention seeker or something. And then there's others who think it's just psychological. Makes me wonder how they can explain her just not having enough energy to even go to her own birthday celebration. All I can say is I know it's tough but you must stick to it. Keep making a fuss, and MAKE them test you for that disease you said is in your family. Absolutely anything is worth a shot here. Even if it turns out it isn't that, you can at least say you've ruled it out. My thoughts and prayers are with you :)+
I feel bad for her. I , too have been called "you lazy arse" and been told to "make myself get up and get a job". Most times I can't get up out of a chair. The internet is my only connection to the outside world. I struggle out of bed to collapse in a chair and lay back while I read comments online. >_>;; Thats the extent of my outside life. Before this I was the ONLY person of my family who went to college to get a degree, exercised every day, AND held a full time job. I can't understand for the life of me why they just think I'd start being lazy all of a sudden. I'm a pretty hyper person.
I've dealt with idiot doctors and my own illness no1 managed to get right for years. Ended up being Lupus, much to House's chagrin. I feel for you Vexen. Don't give up buddy and keep pressing them.
